A New Year

First of all - Happy New (one that will hopefully see more progress for ME and ME related research) Year.

Secondly - i apologize for the lack of updates. There's been some seriously difficult circumstances surrounding the move to my own apartment and i am still in the same place, in the same bed as i am typing this. As i see it now, there's yet another month to go before i will be able to move in. Can you say "red tape and narrow-mindedness don't mix"? *Sigh*

What's been going down since i last updated the Blog, are my attempts to get the people in charge of making the decisions that could ultimately make my life a lot easier, understand my needs and help me to the best of their abilities. Unfortunately, this isn't the easiest of tasks. What i've finally accomplished up to this point is - all the personal assistants are hired, they will widen the doorways and install a bathtub for future rehabilitation purposes and it looks like i finally (finally, finally) will get my electric wheelchair.

Not bad for a handicapped person eh? Well, it took it's toll. The last month has been dreadful at best with more up's and down's then that Magic Mountain ride i went on when i was 15. Now that was a roller coaster. Damn. The herpes outbreaks have come close together unfortunately and brought me down to a level i haven't been at since a few years back before things started to turn. I've now finally reached a level again where i can pick things up on the web again - contacts and such. I'll try to get back to telling my story. I need to.

I have caught a few breaks as well in all the dread - the three out of three PA's i interviewed last week were all great. Really. There is no need to continue interviewing further candidates which saves me time. I even had to let one of them go and only hire two of them as my mom will be staying on as a PA for the first 6 months mostly to do financial errands and such i do not trust the others with yet.

Now it's late dinner time. I hate eating laying down in my bed. It's awful.

Later. Take care of each other and please - open up your minds to the possibility that we do not know everything and listening (really listening) to what other people have to say, might actually give you the insight enough to actually be able to help them properly. Narrow-mindedness is a disease and we need to fight it.