A New Year

First of all - Happy New (one that will hopefully see more progress for ME and ME related research) Year.

Secondly - i apologize for the lack of updates. There's been some seriously difficult circumstances surrounding the move to my own apartment and i am still in the same place, in the same bed as i am typing this. As i see it now, there's yet another month to go before i will be able to move in. Can you say "red tape and narrow-mindedness don't mix"? *Sigh*

What's been going down since i last updated the Blog, are my attempts to get the people in charge of making the decisions that could ultimately make my life a lot easier, understand my needs and help me to the best of their abilities. Unfortunately, this isn't the easiest of tasks. What i've finally accomplished up to this point is - all the personal assistants are hired, they will widen the doorways and install a bathtub for future rehabilitation purposes and it looks like i finally (finally, finally) will get my electric wheelchair.

Not bad for a handicapped person eh? Well, it took it's toll. The last month has been dreadful at best with more up's and down's then that Magic Mountain ride i went on when i was 15. Now that was a roller coaster. Damn. The herpes outbreaks have come close together unfortunately and brought me down to a level i haven't been at since a few years back before things started to turn. I've now finally reached a level again where i can pick things up on the web again - contacts and such. I'll try to get back to telling my story. I need to.

I have caught a few breaks as well in all the dread - the three out of three PA's i interviewed last week were all great. Really. There is no need to continue interviewing further candidates which saves me time. I even had to let one of them go and only hire two of them as my mom will be staying on as a PA for the first 6 months mostly to do financial errands and such i do not trust the others with yet.

Now it's late dinner time. I hate eating laying down in my bed. It's awful.

Later. Take care of each other and please - open up your minds to the possibility that we do not know everything and listening (really listening) to what other people have to say, might actually give you the insight enough to actually be able to help them properly. Narrow-mindedness is a disease and we need to fight it.

Big "H" strikes again

Well, as i'm sure you already know, i've been on the ME "choco treatment" just for curiosity's sake (you never know, right?) and also started taking L-Lysine as i heard that might actually be good against Oral Herpes. Well here comes the irony, since three days ago i've developed a pretty bad case of oral Herpes and have even gotten a "fat lip" from it. Been quite a while since i got one of those so i figured it had something to do with the newly added L-Lysine or the choco treatment and stopped taking both. I will start taking just L-Lysine again later on when the herpes outbreak has passed, to be able to isolate exactly which one of the two that actually caused it. Might have been both for all i know.

The day before yesterday i started a 15 day treatment with Valtrex to try and get rid of this Herpes outbreak and already i feel slightly better. It means that it still has a positive and strong effect on me. Guess that's a good thing because i sure do need my Valtrex considering what a inefficient immune system i seem to have.

Interesting research update

Hey guys, just thought i'd sneak this in, something very interesting that i found a link to.

http://www.immunesupport.com/library/showarticle.cfm?id=8337&T=CFIDS_FM&B1=EM091907C

As it's widely known, ME/CFS seem to have different causing/triggering factors from induvidual to induvidual but if these research findings can be verified etc, this could mean they've found a possible causing factor for what could be the majority of us as i figure it. What's not to forget, is that we've been trough this before though. Many times. So whenever a new research find is publsihed, i always take it with a grain of salt and wait to see what becomes of it. I remember earlier on in my illness, as soon as someone even hinted at there being a possible "cure" or new research finding that would most likely lead to one, i always got all riled up - seeing me just walking out of there out into health and being able to take my life back. Well, that was a long time ago and i now know better. I've come to rely only on myself for the "cure", which has been to listen to my body when it clearly shows me what it needs as well as a cocktail of high doses of Q-10 amongst others. I'll go into that a bit later though.

I never did that you see, listen to my body that is. I got in to the whole gym scene at 14 - wanting to become a body builder a bit to young perhaps, working out hard 5 days a week for up to 4 hours a day, not quite understanding that my body needed rest as well. It was about from the time i was 14 that i started having these continuous colds that ended up lasting a lot longer then what i was normally used to. Most likely, that period of extreme strain on my body, triggered all of this. But triggered what? I almost died in a herpes infection breakout when i was two years old and my life apparently hung on a thin thread. They had apparently never seen a case that bad in Sweden to that date and documented me into their files for research purposes i am told. Obviously i made it through, but every time i get a cold, i also get the oral herpes blisters on my tongue and sores on the edges of either side of my mouth. Sometimes it feels like the herpes is/was behind it all and was keeping my immune system so strained, coupled with my extreme physical exercise, that it eventually lead to this.


Speaking (typing?) of colds - also, as this below article touches upon, getting a cold is one of your worst enemies when you have ME/CFS as it often leads to a relapse and ruins what little progress you've achieved in your journey to what is hopefully better health. Some good reading, check it out.

http://www.immunesupport.com/library/showarticle.cfm/ID/8367

I have no illusions of me being able to keep up with all the current and future ME related research and posting it in this Blog, but i will however post any findings i might come across if interesting enough. There are plenty of places like the ones that are represented in the link section up to your right that fill that need a hell of a lot better then i ever could :-)


Later.